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primary lymphedema

Donna Rabe

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I have primary lymphedema of both legs, and want to know if there are any Drs. that know anything about Primary lymphedema. All I get told here in Milwaukee, WI is that there is nothing the Dr's can do and to just live with this. I have had MLD but I don't get it long enough to help me, and I have compression stocking they don't help either. I also have an HMO witch is Compcare, and they are very fussy what I do or where I can go. Any sugestion would be helpful!!!!! Thank You, Donna Rabe
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