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Rett Syndrome Eating Disorders/Problems

Julie Bracken

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I need info about RS girls with eating disorders/problems. My cousin Angela has stopped eating, she now has a NG tube. She was diagnosed with a hiatal hernia and has been put on Reglan and some other meds. She can only keep the NG tube for one month. Is this common for RS girls? What will be the next step for her? If she has a fundoplication will she start to eat again? Did she stop eating because she is in pain or because of some neurological problem? Any info would be greatly appreciated!! Thanx

 


   
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