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achondroplasio

melanie

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I have a new born diagnosed with achondroplasia. Her doctor doesn't realy know much about the cindrom. she has sudgested limblengthening when she's of age..has anyone had the surgery or has any knoledge of it please give me some advice.. of what if consist of and what is the cost. will health insurance cover the surgery? or if they know of any other treatment.
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