spotcy@aol.com
Hi, My name is Connie. My son, age 16, has just been told he has EDS. The more research I do the scarier it gets. Where do we find Drs. who know about this? What steps should we take? Any info. would help. Also, my 18 mounth old daughter, pops her jaw, back cracks like an 80 year old, and her shoulders pops. Is it norm. for sibs. to also have this? She has not be diagnosed, yet. Thanks. Connie