John Doughty
Message 1 of 1
Is there anyone with a child who has waardenburg syndrome,our child has just been diagnosed with type 1 with profound hearing loss,he has the almond shaped eyes and a wide nasel bridge,he was also born with the white forlock which has now grown out at 6mths old,he also has skin pigmentation.He is due to be fitted with hearing aids soon.if anyone has a child with the same symptoms we would like to hear from you.