Susanne
Our 6 yr. old son has had two separate decompression surgeries - (the first time they did not decompress enough). Many of his symptoms have improved except for the fact that he continues to have SEVERE and increasingly frequent headaches. Neurologists continue to tell us it is migraines and try to medicate him, but the medicines we've tried have had side effects that are as bad as the headaches! We are skeptical about it being migraine and continue to believe that it is somehow related to his condition. We'd love to hear from anyone who has continued to have headaches following surgery and what you have done about it. It's devastating watching our son go through this constantly.