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West Syndrome

Rochelle

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I recently found out that my niece has west syndrome. Although not all test results are in I was wondering if anyone has detailed information about this subject. She did have an MRI, spinal fluid was taken, an EEG was done and blood and urine work was done. They are waiting on results but the MRI did come back normal. She seems to have her seizures during meal times or right after meals. Does anyone know if this is common? What is the future like for my niece? She is 9 months old and she was premature. Her motor skills are not there. She doesn't sit up or crawl. If anyone knows more information please email me. Thanks

 


   
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