Sharon
                    
                    
                    
                    
                    
                    
                    
                        
                        
                        Has your grandson been checked for HHT also known  as Hereditary Hemoragic Telectangasia?  Most  doctors don't have much experience with it.  My mother had it - the only person in our family   with it as far as I know.  You can find   information on the internet.  There are treatments  available.