Barbara
                    
                    
                    
                    
                    
                    
                    
                        
                        
                        EDS is a hereditary auto-immune disease.  I would think that a rheumatologist would be the one to see.  The thing to do would be to call a rheumatologist in your area and ask if they see people with EDS and if they test for it.  You may need to see a geneticist as well.  Hope your friend was wrong.