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Wegener's Granulosis - Help.

Cecily Mosier

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Diagnosed June 2007, Cytoxin twice Imuran currently, Septra and other drugs. Began with bouts of extreme nerve and muscle pain that sent me to ER. Sent to doctor who diagnosed it. I'm now in stage one of chronic kidney disease. I have phases of extreme hyperness, crashing totally. blacking out for no apparent reason. Waking up throwing up. and spasms from time to time. Total mood swings. My symptoms keep changing. Starting to wonder if it's the neurontin. Husband checked off a lot of side effects the pharmacist gave me. Nobody here has treated this disease and I can't seem to get any idea of what to expect next or life expectancy.
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