Debbie
Unfortunatly I can relate to your story only too well! I was misstreated by Paramedics, nurses and doctors. I've had to go by ambulance several times for my dystonia. I have Paroxysmal Dystonia...sounds like you. From the beginning it has always affected my whole body. I'm having a harder time breathing now too. I had to leave my hometown to find a doctor who could dx me! He is 5 hours away from me. I lived in a town with a half a million people in it. You'd think somebody there could have dx me. Oh yeah, BTW I'm also an RN! I couldn't believe being treated the way I was. Sorry to go on and on but I feel for you. When I start in on this subject it really gets me worked up...LOL....Write back to me if you feel like it. I'd love to hear from you. You can use my e-mail address.....Deb :)