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RSD/CRPS - Reflex Sympathetic Dystrophy

Lisa Ann Rose

Message 5 of 8 Previous Next



Dear Melissa, I've had RSD for two years following knee replacement, and heel cord extension. Then following back surgery for ruptured discs, I was left with permanet nerve damage. I have nerve blocks every 3-4 weeks, am on: Morphine patches, oxycontin, Kolnopin, Tylenol #4 (for breaktru pain), and phenergan to off set the nausea from all the meds.-and still I am barely keeping the pain at bay. I can't get into any position where I am comfortable. I am 43, this disease has cost me my profession in teaching(I teach emotionally disturbed adolscents), and my 26 year relationship. My only hope over the past 2 years was my daily contact via e-mail with a fellow RSD sufferer. But on Dec.31st, she committed suicide, much to my horror, (she gave no hint what-so-ever, and I'm trained to pick up on these things) stating she could no longer live with the pain. Her daughter was the on who e-mailed me the news-knowing how close we'd become. I am now in shock, confused and lost without my lifeline. I am writing you in hopes you can hook me up with yourself or someone I can talk to on a daily baisis, or at least ewvery other day who has RSD-I haveno one to talk to in my life who understands the pain we endure, except my pain clinic doc. I'm sure you understand the need to reach outto someone who knows. Thanks for your help and understanding. Please get back to me as soon as possible, as I am still reeling from the news of her death, and desperately ned to hook up with someone. who as I said understands what we endure on a daily basis. Sincerely, Lisa Ann

 


   
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