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I HAVE A FRIEND THAT HAS THIS AND I AM WONDERING IF THERE IS ANY NEW ON THIS SUBJECT? ARE THERE MEDS THAT MAKE A DIFFERENCE IN YOUR LIFE? IS THERE ANY KIND OF ASSISTANCES FOR THOSE THAT HAVE IT? DOES ANYONE KNOW IF THERE HAS BEEN ANY PROGRESS THAT HAS BEEN MADE IN THE LAST 10 YEARS? WHAT IS BEING DONE ABOUT TRYING TO FIND A CURE FOR THIS? DOES ANYONE KNOW WHO HAS THE MOST KNOWLEDGE ABOUT THIS PROBLEM THAT COULD BE CONTACTED? ANY INFORMATION WOULD BE GREAT. THE YOUNG MAN I AM TALKING ABOUT IS IN HIS 20'S AND HAS HAD THIS SINCE BIRTH. I HOPE TO HEAR FROM ANYONE SOON SO I COULD PASS THIS INFORMATION ALONG TO HIM. HE KNOWS OF NO ONE THAT HAS THIS AND THAT'S MAKES HIM FEEL ISOLATED. HE DOES NOT HAVE A COMPUTER IF HE DID I AM SURE HE WOULD LOVE TO TALK TO SOMEONE THAT DOES HAVE IT. SO IF THERE IS ANYONE THAT WOULD LIKE TO VISIT WITH HIM ABOUT THERE EXPERIENCE I WOUL BE MORE THAN HAPPY TO PASS ON YOUR INFORMATION TO HIM AND REPLIES HE WOULD HAVE FOR YOU. THANK-YOU FOR TAKING THE TIME TO READ THIS.