Felicia
My mother has been diagnosed with Fibrillary Glomurularonephritis (sp?). We live in Alaska and nobody including the doctors knows much of anything about the disease as it is so rare. Any help or information about what to expect would be appreciated. Even just someone for us to talk to who may be going through this too would be great. If Mom could find a chat buddy that could talk to her even a little bit would help. We all feel lost and confused and alone. We need help BADLY Please reply ASAP. We need something or someone to talk to. We NEED a support group before we all kill each other with love/anger. I can't find a support group on the internet. PLEASE HELP Thank you Felicia