Karen
                    
                    
                    
                    
                    
                    
                    
                        
                        
                        my heart is breaking as I read these posts.My 18 mo. old son aaron has been   diagnosed with that only by a mri. Is itpossible tht doctors can diagnose only with a mri? He does not walk. he has hypotonia in the trunk and hypertonia in the legs.... please.. help. I am too scared to even go back for any tests.  anybody that has any help with nutrition ar any therapy, please give me hope.  sincerely a mom that will die for my son.