Colette
                    
                    
                    
                    
                    
                    
                    
                        
                        
                        We have a one year old grandson with polands and moebius syndrome.  Our son and his wife have heard of a coonference in Boston sometime in July.  It's like a big support group.  We are trying to find out more information about it.  If any one have info.  please help