Jeanne
                    
                    
                    
                    
                    
                    
                    
                        
                        
                        I have a 9 year old daughter with Polands Syndrome and she is just now asking questions and I am having a really hard time trying to search the internet and medical profession for answers.  I would love any feed back on finding an older female with this condition so that I may have answers in dealing with "development" for my daughter.  Thanks for any help.  Also I would be interested in emailing anybody as a support group considering that I seem to have hit a block wall in doing this face to face at any local hospital.  Excuse me please if I sound upset, it's pure frustration.