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Fo the last 10 years I HAVE BEEN LIVING WITH this condition great help is available if you can treat it now working with a corneal specialist this one of the few eye problems that even at its worst the treatment options are very successful IT can be famillial my brother had transplants 11and 9 years ago doing fine with and after using had contacts for years both hard and a combination of hand and soft which improved the comfort and handling ease( this covers the sclera and allows more oxygen and yet gives a wearing time of more than 12 hours daily. It also depends onyour lifestyle or work if you neen to do fine work and your job is mainly reading After all that in Oct I had the most wonderful gift a rt corneal transplant and 24 hrs after that 20\40 vision I have been there on all stages of the disease. if you would like to hear moreor find other resources contact me at ofunai@AOL.COM